This is our daughter Eve. She was adopted nearly 3 years ago with the diagnosis of cerebral palsy. We knew we would encounter many unknowns as her medical diagnosis was not based on any testing, just an educated guess. Over the years, Eve began having more seizures, her body started moving involuntarily (dystonia), we found out she was deaf and we had a few crises that left her doctors baffled. We were referred to genetics to see if we could find a cause.
A few months after Eve's first genetic testing, we learned about Josie. We took a long time to discuss what saying yes to a child with cancer would mean to our family and how we would manage all her needs. We looked at the outcomes for her tumors and what life would look like for her. Welcoming Josie into our family would definitely be better for her than being alone in an orphanage. And while we prayed for clarity, we had discussions about all our children. The truth is, that we think we have control over our children's health, future and longevity of their lives. With Josie, the odds might be against her, but she really needed a family to increase those odds. It was so much easier to say yes to her, when we gave all our perceived control to God and knew that He knew the number of her days, all of our days.
Then, we received news about Eve's health. She was diagnosed with a devastating rare syndrome. It's progressive and most children do not survive into their teen years. It's awful, plain and simple. We have grieved this information but at the same time, Josie had given us a gift already. Just as we had given her life to God, Eve's life was no different. There was the peace that passes all understanding. The quiet whispers that comes from an all knowing God. He is with us, He knows this about Eve and we are to increase her odds by being her family. In working through these emotions with Josie, we were already a few steps ahead with Eve.
Two girls, soon to be sisters. We are so blessed.
If you would like to be part of Josie's journey, you find see our Reece's Rainbow account here
Our fundraising thermometer is on the sidebar, once we reach $10,700 we will receive $2,000 as a matching grant.