Afua doesn't walk....yet
Afua isn't communicating with signs....yet
Afua is not drinking from a cup....yet
I find myself using these phrases at doctor's appointments, school meetings, discussions with friends or relatives. I can't seem to say the first part, without adding the word yet. I wonder if my yet is viewed as a mom who is unhappy with the way things are or if they will truly understand my feelings behind using the word yet.
Right now, the word "yet" gives us power to hope for Afua's future. It gives us permission to say that we know more miracles are around the corner. That the hours she works so hard in therapy each week are for a purpose. And we hope that she will get to experience new things as a result of that hard work.
Yet, if nothing changes, if nothing improves, if life tomorrow is exactly as the days before, she is loved just the same. Her performance is not a measure of her worth.
So I guess this is really the heart of parenting a child with special needs. We live in the moment, we hope for the future and we constantly worry that our moments with our kids are cut short. Balancing all these feelings is 90% of my journey.
This is beautiful: "Yet, if nothing changes, if nothing improves, if life tomorrow is exactly as the days before, she is loved just the same. Her performance is not a measure of her worth."
ReplyDeleteNow that I'm all choked up, you should know you have a new follower.
Thank you for your kind comment:)
DeleteThank you so much for sharing, you have a wonderful attitude.
ReplyDeleteJust found your blog through facebook. Love it! Keep on writing.
ReplyDeleteWe must have our hope! I especially could not go on if I did not have hope in an eternal home where Bethany will one day be happy and healthy!
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