One of the first things we knew about Afua was that she has Cerebral Palsy. We were not troubled by the diagnosis and we knew that she was perfect just as she was. But once we took her to our first neurologist (I say first because we now have two that follow her) he was not sure if there was another type of neurological disorder going on. We had and MRI and we waited for the results.
Turns out, she does have CP. She had lack of oxygen to her brain either during birth or in utero which caused a part of her brain to be affected. We are following up with neurologist #2 to understand the extent of her injury better. So in some ways I was thankful to know what is going on, but a part of me was so sad that day.
I cried for my little girl and I cried for all that she has been through. I can't understand the magnitude of the rejection and loss she has felt during her first years. I cried for a culture that we love so much that doesn't love our daughter with a disability. I have spent enough time in Ghana to know how people with disabilities are viewed and how limited their opportunities are.
Many therapists that have evaluated her have given us such promise for her mobility and improvement in general. We are starting from the beginning, teaching her the most basic things we would teach our 6-9 month old babies. It's exciting to see her respond to the techniques and all the medical things that are available to her. Right now, sky is the limit and we get to witness her healing as we find more answers.