Thursday, January 29, 2015

The most powerful word

Sharing a post from last year that still applies to my life today....


Afua doesn't walk....yet

Afua isn't communicating with signs....yet

Afua is not drinking from a cup....yet

I find myself  using these phrases at doctor's appointments, school meetings, discussions with friends or relatives. I can't seem to say the first part, without adding the word yet. I wonder if my yet is viewed as a mom who is unhappy with the way things are or if they will truly understand my feelings behind using the word yet. 

 Right now, the word "yet" gives us power to hope for Afua's future. It gives us permission to say that we know more miracles are around the corner. That the hours she works so hard in therapy each week are for a purpose. And we hope that she will get to experience new things as a result of that hard work. 

Yet, if nothing changes, if nothing improves, if life tomorrow is exactly as the days before, she is loved just the same. Her performance is not a measure of her worth. 

So I guess this is really the heart of parenting a child with special needs. We live in the moment, we hope for the future and we constantly worry that our moments with our kids are cut short. Balancing all these feelings is 90% of my journey.

Monday, January 26, 2015

Sensory Fun for February

All kids benefit from sensory activities, but I've noticed that my children with trauma and special needs absolutely require them. Our play room is slowly transforming into a sensory friendly space with a swing, trampoline, wobble boards and activities for gross motor movement. We are also focusing on tactile sensory activities to do with our younger ones and I wanted to share our February project.




This is my favorite play dough recipe, it's safe for all my kids. Today, I added just a drop of food color (not needed if red dye does not agree with your child) and a dash of vanilla. My daughter thought it smelled like cupcakes.
top: with glitter, pink created with 4 drops of red food color, purple was 6 drops of red, 3 drops of blue


Some of these things I picked up at our Target dollar spot, others at a local craft store. Just make sure the items you choose are age appropriate and don't pose a choking hazard.


cookie cutters, pom poms, heart shaped pony beads and spikey balls


We used our dough today to make cookies. Rolling dough is a great "heavy work" sensory activity.

Even our boys got in on the action, this recipe makes lots of dough for all.


the spikey balls made fun designs on cookies
This was a great sensory activity. Kneading and rolling dough, using cookie cutters, various textured "toppings" and the smell of vanilla dough kept my kids busy for an hour. Perfect for a cold, snowy day. 



Monday, January 12, 2015

Orphanage

Oh, how I hate the word orphanage.  I hate what they do to children. I often say "children belong in families, not orphanages" and it's more than just a cliche to me.

Raising a child who lived in an institution, an orphanage, lets you in on the devastating truth about what that life does to a child. The effects are long lasting and they are heart breaking. That is why I advocate for children and want orphanages emptied out.

When Afua first joined our family, I could place her in the middle of a large room and she would only move the area equivalent to her crib. She didn't know a world larger  than that existed. She didn't know about toys, music, about tickles or a brother's love. After a short amount of time, she was tired and wanted to be alone.

discovering toys

She wouldn't cry, because in an institution crying does not amount to positive attention, only punishment. Institutionalized children feel little pain, they can shut off their world to block out feelings and they stop experiencing reality. Some rock, some bang their heads, some cause harm to their bodies. That is familiar and that brings comfort. Mother's arms feel scary and unknown. 


It's hard to describe the orphanage experience without exposing what my children went through. And it's just as hard to think other children are living that reality every day.  My children are brave, resilient survivors of a life that no child should endure.

This is why I advocate. Because I went, I saw and I experienced the after effects with my children. I know more children need families. The ones who are hidden in cribs, need voices to share that they exist.Because a picture of a child that is malnourished, neglected, disabled is hard to see. And it's sometimes scary to say "yes" to the unknowns that it brings. But on the other side, a family can be a game changer.


And this can be the result:
experiencing childhood joys





Wednesday, December 31, 2014

Older Children Waiting for Family

There are many children waiting for families, mainly because of their age. It takes more than love but so many of us have more than love to give.
Check out Reece's Rainbow and learn more about waiting children.
Here are a few of them many children that have touched my heart.



































Sunday, November 2, 2014

What do the orphans really need?

The word orphan can be so emotionally charged. A child growing up without the safety net of a family, alone, hungry, vulnerable. Isn't that what we think when we hear the word? Orphan is also an immigration term that is used in international adoption. Orphan status is achieved even if a child has a living parent, but that parent is unable to care for them. And what about our foster care? These children are orphaned into a government system but may have a biological family unable to care for them safely. But there is a family nonetheless.


So what do the orphans (or vulnerable children)  really need from us? (Us meaning adoptive parents, potential adoptive parents, concerned advocates or those involved in the care of these vulnerable children). 


1. Families who will CARE for them
Adoptive families are needed. Desperately. They are needed in foster care to provide a safe place for a time. They are needed in domestic adoption and international adoption. For children, who have no other option, adoption is a gateway to safety, support, stability and love. Family is an important social unit that can't be replaced by institutions. So families are needed to step up and open their hearts and homes. 

Daddy's girl since day 1

2. Adoptive parents who will FIGHT for them.
Adoption starts with loss and trauma. Children need well trained, well educated parents who will research every possible resource and counseling and treatment to journey with their child toward healing. The best thing I did was to imagine the absolute worst that could happen (sexual abuse, violence, attachment problems, medical conditions..) and what I would do in each situation. Our social worker suggested that and I allowed my thoughts to "go there". For a moment, I took off my rose colored glasses and stopped skipping through the tulips. What would it be like living with a child that hated me? That had behaviors that would upset our other children? We have had unexpected bumps on the road and it's not always because of children who have experienced trauma. I haven't always attached properly and I haven't always used the right parenting techniques. It's not about being perfect, it's about endurance.It's about reaching for resources and not giving up. Is every adoption a perfect match? No. but vulnerable children need parents who will ensure that they will do whatever is needed. Until.

I am thankful he allowed me into his heart. We have learned to trust together.

3.  Adults who place the child's best interest first.

Before we even get to the point of adoption, a child needs a set of professionals to determine what they need, usually a representative in their home country (orphanage director, social worker etc) and an entity here in the US. Some children need temporary help when a family is going through a crisis. Some children need an adult to find their families and reunify them. Some can be adopted within their own country. Some (hopefully the smallest possible number) will need international adoption. Adoption agencies exist for the sake of adoption, which is not a bad thing. But are they really the most unbiased way to decide what is best for a child? If I go to a surgeon, more than likely they will recommend surgery. It is what they do and what their focus is. Will they always suggest surgery? No, but often they will. Same with the agencies. They see the beauty of adoption, the financial benefit of adoption and they rarely have anything else to offer. Family preservation is an afterthought or a small program to give back to the country they work with.So vulnerable children need someone who can examine their situation without any financial benefit if the child is placed. The best way to care for orphans is to prevent a child from becoming one.  Domestically, expectant mother need the same support through counseling or social services before an agency or adoption attorney is in the picture. 

4. Adoptive parents who are willing to WALK AWAY.
In our early days of adoption, we said a lot of NOs. Agencies that didn't feel right, children that didn't seem to need adoption, countries that had high corruption. But once we found OUR children (I was foolish to even use that term so early in the process), I don't know if I could have walked away. And I have watched families complete adoptions and live with lies. And figuring out the aftermath of raising children who had parents but maybe few resources. Many wish they could have been there before the family's tragedy began, but most felt hopeless to do anything but complete the adoption.Part of adoption is walking away, or supporting a child in a different way that originally thought. Or refusing to participate in practices that creates orphans. 

I have spent time with birth mothers/first mothers in Ghana. Not all understand what happened to their children. Not all understand the permanency of adoption. Some are asking about their children and expecting them to return. Those conversations haunt me. Mothers are hurting and missing their children while we think we are adopting orphans. My brain doesn't reconcile that. At all.



5. People who will ADVOCATE for them

There are many children that need families. Maybe not 152 million as often mentioned, but there are too many. Children hidden in cribs in Eastern Europe. Children with medical needs all around the world. Children abandoned due to cultural beliefs. Children in foster care and in residential facilities in our home states. They exist, they need an army of people searching for families for them. To make the invisible children visible. Advocacy is just as important and noble as adoption itself. Advocacy should be on every adoptive parent's mind long after their OWN children have joined their family. 

I visited the orphanages, I saw it with my own eyes. The sounds, sights and smells of 30 children with special needs living in one small room never leave me. I should do a better job in telling their stories. They need all of us to do a better job.

There are no orphans in this picture. There are beloved sons and daughters because they have a family that loves them. Forever.


This is why I believe in adoption. Because some children despite all efforts, can't stay in their home countries. They need a family or they wouldn't survive. There were people who investigated Afua's background, others advocated for her, some gave financially and we adopted. No one thing was more important than another. But I must say, I get the best part: I get to be her mom. 




Monday, October 27, 2014

Cochlear Implant Surgery

After our failed attempt at cochlear implant surgery in August, we consulted a new surgeon at a different children's hospital. It felt right to get a fresh start after so many glitches occurred at our first one. Our new surgeon has completed 1200 cochlear implant surgeries and the office staff was helpful and experienced.

After our hospitalization earlier in the month, I feared our October 20th surgery would be postponed, but we received all clearances in time to move forward. Afua was healthy, her strength was returning and we felt an overwhelming peace about the decision.
enjoying some pre-surgery snuggles

On October 20th, we woke up early and made our way to the hospital. While I didn't want her to have a yet another surgery, this held much promise. 
happily waiting

Everything went smoothly and her implant was tested under anesthesia. It worked well which was a relief. We received our suitcase of technology and a brief explanation by the hospital audiologist.

Before long, Afua woke up and we went home. She was very nauseous the first day but the second day she was comfortable. We stayed home from school the rest of the week and she will return to school on Monday.

a get well bear got her smiling
snuggles
we named him "the most expensive stuffed animal that includes a cochlear implant as a bonus gift"

Our activation will be November 21st and I am not sure what her reaction will be. Afua has had profound hearing loss in her left ear and severe hearing loss in her right ear since birth. She can hear some sounds from her right ear but she has never heard speaking (at least not clearly). This may be frightening or this may be exciting to her. Knowing Afua, she will display her usual determination to figure it out.

 Will she be able to speak in the future? We don't know, but we sure can dream. 

Thursday, October 23, 2014

Review of Ringling Bros. Barnum & Bailey: Legends

I received something of value from Feld Entertainment as part of their Insider Program. I was not required to write a positive review. The opinions I have expressed are my own.

Joy's favorite moment





The Ringling Bros Barnum & Bailey: Legends did not disappoint! Action packed show had something for all my kids to ooh and aah over. Joy loved meeting the performers during the free pre show activities. 

She also has not stopped talking about the horse with wings. 


graceful elephants

We saw an elephant up close during the pre show and we loved watching them during the performance also. 

Torres Family

The Torres Family with their motorcycles was my boys favorite. They kept adding riders inside the sphere shaped cage and it was timed precisely to avoid collision.


Our Ringmaster, Jonathan Iverson made the show so special. His voice set the tone for an exciting evening and his singing was spectacular.


I loved the horses and the riders performing daring jumps on and off them.

And the daring flying trapeze...it just isn't a circus without it.


The finale included all the acts presented in the show and I could see that my children had a wonderful time by the looks on their faces. The circus was great fun for the entire family!!!

 Click here to purchase tickets for a Ringling Bros. and Barnum & Bailey performance in your area!

There are still plenty of performances left!
The best part is you can receive a discount off  tickets if you use the code  QUEST4:

  • $8 off VIP ($40 regular price on Wed/Thurs, $43 regular price on Friday-Sunday)
  • $8 off P3 ($23 regular price on Friday-Sunday)